Friday, March 11, 2011

1 year

It's been a year. 1 year ago today we were not sure the fate of our daughter. She woke up Thursday, March 11, 2010 limp and unresponsive after not nursing for 2 days and being very fussy. I rushed her to the pediatrician's office where she called an ambulance to rush us to Children's Hospital. We spent the entire day in the ER and after blood test after blood test and CT scans and even a spinal tap there were still no answers. Gracelyn was admitted and moved up to PICU, where the doctor on call, Dr. Mo, came in and after evaluating her told us that he was pretty sure she had c-botulism. What a Godsend he was, he was supposed to be at a conference that week but it was canceled unexpectedly. No other docs in the unit had ever seen botulism before. She received an immune-globulin which stopped any further destruction on her nerves. The damage that was most noticeable was a weakened body, her head had to be fully supported like a newborn, she couldn't lift her arms and she wasn't able to suck.
By God's grace she went home much sooner than the doctors ever predicted. By God's mercy she only underwent 12 weeks of PT instead of the 6 months they predicted. By God's love she is, a year later, a healthy toddler full of energy, smiles, spunk, attitude and is a miracle.

I made a video for Gracelyn's first year, in lieu of scrapbooking because this took less time. The first year video is quite long so here is just a portion of it, her battle with botulism.


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